<HTML><FONT FACE=arial,helvetica><FONT SIZE=2>Dear: PTG forum,
<BR>
<BR> I wrote a very short e-mail yesterday on hearing trouble. I wanted to
<BR>see if I got a response, or if I did correctly. I did get some responses and
<BR>I am glad, thank you for those who did!
<BR>
<BR> I want to begin by saying that this will be a rather long letter. My
<BR>situation is rather odd, and It would be very much appreciated if anyone can
<BR>shed some light on my condition, or is suffering from the same problem.
<BR>
<BR> To begin, my name is Simone Tucci, and I live in Toronto, Canada. I am
<BR>26 years old and I have been tuning pianos professionally since 1998. I am
<BR>not a member of the PTG though I do get their monthly magazine. When I began
<BR>my career I had perfect hearing, and no genetic hearing disorders in the
<BR>family. I was tuning an average of 3 pianos a day sometime 5-6 and sometimes
<BR>1, it varied. I also began to work at an institution where there were many
<BR>big grands in very small studios. I was coming home at night with headaches,
<BR>like I blasted my ears for too long every day. So I decided to wear ear
<BR>plugs. So I just bought ear plugs at the local store, 3M brand (foam) were
<BR>the ones that I was using. I thought that they were great I could hear
<BR>everything that I needed and I was protecting myself. I wore them for a
<BR>period of 2 years, every piano I tuned I wore them. Until last October 2000,
<BR>that is when the problem began.
<BR>
<BR> I first noticed that my ears began to ring (tinnitus) mostly in my
<BR>right ear. Then I noticed that when I would do something like drop a part or
<BR>a screw on my work bench my ear drums would have some sort of popping reflex
<BR>reaction. It felt almost as if they popped from out of their footing, I hope
<BR>that makes sense! I sort of ignored that symptom, I didn't think that it was
<BR>important. So I saw my doctor and he sent me to an ENT. I had my hearing
<BR>tested and it came out completely normal. The audiologist recommended that I
<BR>get a pair of ER-15 musicians plugs, and continue tuning.
<BR>
<BR> So I did. I did have to wait for an appointment to see the audiologist
<BR>to fit the moulds for the ER-15 plugs, so I went on doing what I was doing.
<BR>Then in October 2000 I noticed that is really began to get worse. I noticed
<BR>that kitchen noises bothered me, and in the bathroom, and people talking to
<BR>me really blew my mind. My ears couldn't take it. I then tried to tune
<BR>without the ear plugs and it was Impossible!! I thought that my ear drums
<BR>were going to explode. so I got scared. I went to my doctor and he sent me to
<BR>a Hyperacusis clinic. Once there, I saw an audiologist and told him the whole
<BR>story. He said that it was a classic case where I became excessively
<BR>sensitive through the use of improper ear plugs. He tested my hearing and
<BR>again it came out as normal as can be and then he arranged for me to have a
<BR>ER-15 ear plug fitting. (For those of you who don't know of the Musicians
<BR>Plugs there is a ton of stuff on-line.) He also said that I should have a
<BR>radio on in the background with it set in between stations, to hear the
<BR>static or white noise, this will help to desensitise my ears (brain really)
<BR>from sound, and it should take 2-3 months. I was glad to hear that.
<BR>
<BR> So the months pasted and no change. I kept going back for visits and
<BR>telling them that there was no change and they said give it more time. After
<BR>6 months I went back and asked them to put me on the TRT ( tinnitus
<BR>retraining therapy) this also treats Hyperacusis. So they did a test on me to
<BR>see if I was Hyperacusic and I am not. So I told them what do I need to do???
<BR>they arranged for me to have a ABR (acoustic Brainstem response test) to see
<BR>if there was a problem with the acoustic nerve. Had the test, and came out
<BR>completely normal. I asked them What do I do? They recommended that I take
<BR>Valium. I said that that is not the answer, that will only dope me up and
<BR>cover the disorder and not heal it in anyway.
<BR>
<BR> So I began to seek out other doctors, I saw a Marshall Chasin, a very
<BR>known audiologist that works with musicians, and he did a test to see I was
<BR>Hyperacusic and technically I am not. All the other audiologists agreed with
<BR>the similar tests. He didn't know what it could be. I also saw an Otologist,
<BR>and he did know ethier. He said try Valium.I saw in total 12 doctors between
<BR>audiologists, ETS, Otologists, and I also tried acupuncture.
<BR>
<BR> I have now stopped tuning, because it's unbearable and trying to take
<BR>it easy. I am seeking a Homeopathic doctor to see if that can help. I have
<BR>also been researching hyperacusis online and I do think that is what I have,
<BR>there are different forms of it. I am going to demand to do the TRT so that I
<BR>can continue with my life. In addition I also had an MRI and that showed
<BR>everything to be normal.
<BR>
<BR> Just to clarify what is happening with my ears. They are (the ear
<BR>drums I think) very sensitive to sound. People talking specially women, and
<BR>my own voice, and sudden volume changes, and if at the piano, the higher
<BR>register. Not all the notes some here and there. I have distortion to
<BR>somewhat loud sounds, but the strangest thing is that if I hear one sound at
<BR>the time that is the biggest problem for me. If I go to some dance club I'm
<BR>fine, weird!!
<BR>
<BR> I want to thank all of you people for taking the time in reading this
<BR>situation that I am in, and if anybody can tell me something, or is in the
<BR>same situations or has questions please, please e-mail me. I got a computer
<BR>just to get help from anybody.
<BR>
<BR> Sincerely, Simone Tucci
<BR>
<BR>
<BR>Simone Tucci
<BR>Toronto, Ontario, Canada
<BR>
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